Loomio
Wed 10 Aug 2016 4:00AM

Share guidelines for anonymizing quantitative and qualitative data, and for reusing it across projects.

KL Kristi Leach Public Seen by 349

Would be good to reference some existing standards for engaging with research participants that are in plain language and to discuss scenarios that could come up at Hack Night.

DC

Don Chartier Wed 10 Aug 2016 4:27AM

I'm also very interested in this topic. Let me know what I can do.

DE

Derek Eder Thu 11 Aug 2016 4:35PM

I had to complete a research ethics training through Northwestern for a project a few years ago that I found to be a good basis for thinking of issues of data privacy, protecting personally identifiable information (PII), and treating research participants ethically (the Tuskegee syphilis experiment was a prominent example).

Not sure what public resources like this are available, but seems like we should look for some.

KL

Kristi Leach Thu 11 Aug 2016 5:19PM

Agreed. This seems like a potential one time or recurring breakout, with maybe some reference info for the Civic Tech 101.

EH

Ethan Heppner Mon 15 Aug 2016 4:22AM

Thumbsup to this idea, I'd like to learn more about it too.

My one concern about adding this to the 101 would be that we would need to be selective in the amount of information we provide to new people as presenting too much at once might be overwhelming.

KL

Kristi Leach Tue 13 Sep 2016 11:27PM

I think this discussion has pointed out a few helpful topics to cover, and it does seem like too much for the 101 session. Maybe a one-time breakout and a one page reference doc.

Topics:
- Ethical considerations in designing a study
- Obtaining consent
- Protecting PII
- Anonymizing results (qual and quant)
- Ethical considerations of reusing data and results across multiple projects

I would need to research how some of these apply to the Hack Night context. Plus anonymizing quantitative data is totally outside my expertise.